Here Comes Santa Claus Here Comes Santa Claus....

Well, we did it. We took the kids for their second ever encounter with Santa this week. Although we has to drive all the way across Austin just to visit the "real deal", we had a great time. You see, "Santa" i.e. the real deal in our book, hangs out at Lakeline Mall these days....same place as last year.

Jenna gave him the look over but seemed pretty comfortable sitting on old St. Nic's lap. Being the busy little gal she is, she didn't want to just sit around for too long. She did great though...no smiles but no cries or screams either.

Blake did great too. He was a bit cautious as we placed him on the lap of this large, plump, old guy dressed in red and with a beard of white sitting there talking to them. Blake sorta looked at him, looked toward us and tried to make up his mind about how he felt about mommy sitting him there and asking him to smile. What the heck is going on here, is what I imagined him thinking. Then is began to cry a bit after the pic was taken so I went to him and let him stand at Santa's feet. He didn't want to come to me. He turned around and gave Santa a big hug around his super sized waist and cried. It was as if he didn't want to leave his lap. It was realy cute. Santa was kind and calm, which helped a lot. He told me, "Hmm, I've never gotten that before...a cry and a hug, it's most defintely either one or the other".

We stood and talk to Santa a minute or two more then walked around the mall a bit. There was a veteran's group there that included one of our neighbors. He gave Jenna and Blake a dumdum sucker. Boy did Jenna go to town!! This was her first experience with a piece of candy, let alone a sucker. And to beat all, it was a blue sucker. She loved it. Her tongue, lips, hands and cheeks were blue. I called her my little smurf for the rest of the day. :) Blake was not interested in his, he was too busy "mall walking".

Oh yea, and Jenna's hair? Well, it was all spiffy until they played in the mall play area.....they had a great time.

So very very grateful.......

I am sad tonight, very sad. I am also so very grateful. Grateful that my babies are healthy and well. So many of us take our health for granted. Some take their children's' good health for granted. Tonight I feel a tightness and torn feeling in my heart. I have just learned of a precious little girl who is losing her battle with cancer. She recently underwent a bone marrow transplant and her health continues to decline. She is in a very fragile state right now. She maxed our her ventilator and is now on the oscillator. I cry as I envision this horrific truth. Reading those words" "on the oscillator" brings back a very real feeling anxiety, fear and sadness. Blake was on the oscillator. This was one of the most terrifying things to witness while we were in the NICU. The oscillator, unlike the ventilator, does not inflate and deflate the lungs rather it keeps the child's lungs open with a certain pressure (PEEP), and vibrates the air at a very fast rate (up to 600 times for SECOND, yes, second!).The vibration helps gases to quickly diffuse in and out of the baby's airways without the need for the "bellows" action which may damage delicate lung structures. Seeing Blake on the oscillator was truly terrifying. Watching his chest vibrate, rather than seeing the up and down movement of natural breathing seemed very artificial....granted it was but witnessing your child lying there alive but seemingly otherwise as his chest vibrates is beyond heart breaking. It is a reality-filled slap in the face, seeing your child lying there in a lifeless-like state, the movement caused by the oscilator reminds your eyes that your baby is on complete life support.

I can not imagine what trauma this family is experiencing. I can not imagine the pain and exhaustion this little hero of a gal is feeling. It is clear that she is an extreme gal when it comes to being a fighter. I pray that this most deserving "baby" receives the miracle she so desperately needs. Please join me in praying for Aubrey Deno of Indianapolis. She is two years old but has the "fight" of a pro.

If there was one thing that Jason and I learned from our NICU experience, there were hundreds. One of the most amazing and incredible things that we learned was that even in the darkest of situations, miracles really can occur. Our amazing support system that included friends, family members, co-workers, acquaintances, friends of friends, nurses, spcialists, strangers, our blog followers and those who simply only heard of Jenna and Blake's fight for life all came together to send tremendous hope. That very hope was exhibited in various ways....from a kind word, a daily, sometimes hourly prayer, a hug, a loving gesture, a visit, a letter, an email, passing along our story and/or blog, positive thoughts and energy. Those very acts along with lots of amazing efforts by our medical team helped to see us through, day by day. That very hope for life and the strength of Jenna and Blake was so powerful. I can not sayoften enough, how we know in our hearts that hope and positive thoughts can help create miracles. There were a many times that Jenna and/or Blake's frail bodies, pushed beyond their limits appeared to be on the brink of giving in. Terrified, confused and forever changed, me, Jason and our supporters continued to be hopeful and continued to stay positive. I prayed and prayed. Many continued to pray. From that hope and from their sheer will, Jenna and Blake beat all odds....more than once or twice.

I write of power of hope and prayer, knowing that Aubrey also has an amazing amount of support from her family, friends, and strangers. I do not know this little girl personally but she has touched my heart nevertheless. I know that God is great, as I am witness to the amazing things that come from his and our positive energy. I pray that he feels Aubrey's time here on Earth is not over. I am confident that with him and with us who care for her and with hope, she will pull through....that her mommy, daddy and big sis will be able to see her smiling face for many years to come. Please keep her in your thoughts.

http://www.caringbridge.org/visit/aubreydeno

Positive thinking and hope creates a beautiful foundation for miracles. I truly believe this.

Tonight, I thank God/positive thinking and energy for the miracles Jason, Jenna, Blake and I have been granted. I pray that a miracle will be granted to Aubrey.

Fun at the Park

Here are a couple pics from our visit to Mafield Park. We met Mimi and Papa there for family pics. Jenna was a real trooper. She was not feeling well throughout the day but did well regardless. She found a light that she LOVED and just could not get enough of. Blake loved going through the leaves and following the peacocks. More pics to come but here are a couple.

Finally some new pics....

http://picasaweb.google.com/lh/photo/jvFOYnX6yUZI9IrU_aB45w?feat=directlink

March of Dimes Ambassador 2011 Family Nomination Update

Here is the email we received from the MOD Executive Director.

Kim and Jason,

Hello, my name is Susie Carr and I am the Executive Director for the Austin Division of the March of Dimes. I wanted to take a moment to Thank You for applying to be the 2011 Ambassador Family for Austin. Your story is very compelling and I thank you for sharing it with us.

Our volunteer committee has reviewed all of the applications and have selected another family to serve in 2011. I would like you both to know that it was a very difficult decision and a very close vote. With that said, I would very much like you to consider applying again for the 2012 Ambassador. I truly feel that you would be great representatives for the March of Dimes.

Thank you both again, and I hope you have a wonderful holiday season.
. . . . . . . . . . . . . . . . . . . . . . . . . . . . .

Susie Carr
Executive Director

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Jason and I are so happy to have been nominated and truly feel honored. Furthermore, the fact that we are being considered for this "honor" again for 2012 is pretty exciting. We look forward to this year's MOD events, spreading awareness and continuing to share our story in hopes to give others hope.

Fight for Preemies // Bloggers Unite

Fight for Preemies // Bloggers Unite

November is National Prematurity Awareness Month~My Article Re:Prematurity Awareness

November certainly is a very special month as it marks the start of the holiday season. Furthermore, it marks another very special time of the year. Novemner is National Prematurity Awareness Month. In an attempt to help spread awareness, I have included an article that I recently wrote. I hope you may take away a bit of otherwise unknown information, a bit of inspiration and a desire to join us in speading awareness.

I recently wrote this article to share with my fellow AMOM (Austin Moms of Multiples) friends and now would like to share it with all of you, Jenna and Blake's great supporters.

November is Prematurity Awareness Month-Please Wear Purple on November 17th.
Well ladies, here we are in November already. With November marking the start of a soon-to-be holiday season, November also marks a time of awareness, reflection, celebration, and rememberance.

Being a member of this wonderful group, we have all been touched and effected by prematurity in one way or another. Some of us have had a family member, co-worker, friend, or relative who has given birth prematurely. Some of us has had nieces, nephews, or cousins born prematurely. Moreover, many of us have helped support fellow members as they've struggled through challenging NICU journeys. And still, there are others of us who know that journey all too well as we watched our own children be born so small, so fragile.

Prematurity effects almost everyone at sometime in their lives. According to the March of Dimes, each week in Austin, 65 babies are born premature. One in seven babies are born premature in Texas. Furthermore, on average, 26 babies are born each week with a birth defect in Austin.

Thankfully with the help of the March of Dimes, more and more babies are born healthy. Those who are born premature are provided the medical attention to better help them conquer prematurity and fight against threatening long term effects.

By raising awareness, we too can make a difference. In an attempt to share my support in this endeavor I thought I would pass along some ideas that I have found from various resources....ways that each of us can help raise awareness. ~Share your story on the online NICU support forums.
~Share your story in pictures of your baby's journey and growth through the NICU. Make an album that you can share with others to help them become aware of the challenges that take place in the NICU. ~Blog about Prematurity Month or about your own experience with Prematurity. ~Email friends/family about Prematurity Month
~Honor a child by creating a virtual band in honor or memory of a child, an organization or baby on-the-way. ~Visit http://marchofdimes.com/prematurity/index_advocacy.asp to find more ways to help fight for preemies ~Wear purple (or a purple ribbon) on November 17th, National Prematurity Awareness Day.

Perhaps the easiest thing we can do to help raise awareness is simply to share....share your experience, your thoughts, your passion for helping all babies be born healthy.

Please join me on November 17th and add a little (or a lot) color purple to your attire. Let's join in raising awareness and in honor of so many of our smallest of heroes.

Thanks for listening.....

I received an email from the MOD family team coordinator. It stated that The March of Dimes is currently holding a "NICU Necessities Campaign". They are collecting donations (preemie hats, socks, and clothes, rocking chairs or gliders, disposable cameras, blankets, restuarant gift cards, swaddle blankets, Zakys, bouncers, journals and pens) for families in the NICU and will be making a delivery on November 17th. For more info, feel free to email Stasia Vance, the family team coordinator at SVance@marchofdimes.com or feel free to email me as well.